Sickle Cell Disease Association of America

national organization dedicated to supporting people living with sickle cell disease

Based in MD

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AI Overview

With $200K in lobbying spend across 11 quarterly filings, Sickle Cell Disease Association of America is an active lobbying client. Their lobbying covers 6 issue areas. Active from 2023 to 2025.

$200K
Total Spend
3
Years Active
1
Firms Hired
2
Lobbyists Deployed
6
Issues Lobbied

Spending Trend

View as table
YearLobbying Spend
2023$40K
2024$80K
2025$80K

Issues Lobbied

Lobbying Firms

Lobbyists

What They Lobby About

These are actual descriptions from their quarterly lobbying disclosure filings, summarizing what they lobbied Congress and federal agencies about.Issue areas: Budget/Appropriations, Health Issues, MED, Medicare/Medicaid, Pharmacy and 1 more

  • Issues related to federal programs related to sickle cell disease, Medicare and Medicaid policies related to services needed by people living with sickle cell disease, and research and data collection
  • Sickle Cell Care Expansion Act (H.R. 3100/S.1423) Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 (H.R. 3884/S. 1852) Sickle Cell

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Data Sources: Senate LDA Filings

Last updated: February 2026

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