Immune Deficiency Foundation

​Patient advocacy organization

Based in MD

🤖

AI Overview

With $560K in lobbying spend across 26 quarterly filings, Immune Deficiency Foundation is an active lobbying client. Their lobbying covers 4 issue areas. Active from 2020 to 2025.

$560K
Total Spend
6
Years Active
1
Firms Hired
3
Lobbyists Deployed
4
Issues Lobbied

Spending Trend

View as table
YearLobbying Spend
2020$90K
2021$80K
2022$90K
2023$110K
2024$110K
2025$80K

Issues Lobbied

Lobbying Firms

Lobbyists

What They Lobby About

These are actual descriptions from their quarterly lobbying disclosure filings, summarizing what they lobbied Congress and federal agencies about.Issue areas: Medicare/Medicaid, Budget/Appropriations, Health Issues, MED

  • Labor, HHS Appropriations Act provisions focused on access to care and SCID newborn screening; Access to in-home IVIG; COVID-19 response and beneficiary access to care as a result of the emergency
  • Access to in-home IVIG including around current IVIG Bundled Payment Demonstration; S. 3457, H.R. 6218 - Preserving Patient Access to Home Infusion Act; COVID-19 response and beneficiary access to car
  • Fiscal Year 2021 Labor, HHS Appropriations Act provisions focused on access to care and SCID newborn screening
  • Fiscal Year 2021 Labor, HHS Appropriations Act provisions focused on IVIG bundled payment demonstration and HRSA newborn screening

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Data Sources: Senate LDA Filings

Last updated: February 2026

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