Huntington's Disease Society of America

nonprofit organization

Based in NY

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AI Overview

With $870K in lobbying spend across 30 quarterly filings, Huntington's Disease Society of America is an active lobbying client. Their lobbying covers 1 issue area. Active from 2019 to 2025.

$870K

Total Spend

Years Active

Firms Hired

Lobbyists Deployed

Issues Lobbied

Spending Trend

View as table

Year	Lobbying Spend
2019	$120K
2020	$110K
2021	$120K
2022	$150K
2023	$130K
2024	$120K
2025	$120K

Issues Lobbied

Medicare/Medicaid

Lobbying Firms

Thorn Run Partners

Lobbyists

Catherine Finley

What They Lobby About

These are actual descriptions from their quarterly lobbying disclosure filings, summarizing what they lobbied Congress and federal agencies about.Issue areas: Medicare/Medicaid

•To create parity in the Medicare program for persons living with Huntingtons Disease.

•Advancing Medicare coverage for persons living with Huntingtons Disease.

•Advancing S. 1476 and HR 2770, the Huntingtons Disease Parity Act, which eliminates the two-year waiting period for Medicare eligibility for persons with HD who qualify for disability benefits.