Hereditary Hemorrhagic Telangiectasia Foundation

patient advocacy organization for individuals suffering from a rare disease

Based in MD

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AI Overview

With $330K in lobbying spend across 33 quarterly filings, Hereditary Hemorrhagic Telangiectasia Foundation is an active lobbying client. Their lobbying covers 4 issue areas. Active from 2018 to 2025.

$330K
Total Spend
8
Years Active
1
Firms Hired
1
Lobbyists Deployed
4
Issues Lobbied

Spending Trend

View as table
YearLobbying Spend
2018$40K
2019$40K
2020$50K
2021$40K
2022$40K
2023$40K
2024$40K
2025$40K

Issues Lobbied

Lobbying Firms

Lobbyists

What They Lobby About

These are actual descriptions from their quarterly lobbying disclosure filings, summarizing what they lobbied Congress and federal agencies about.Issue areas: Defense, Health Issues, Budget/Appropriations, MED

  • Research opportunities at the Department of Defense
  • HR 3219/ HR 3354, FY 18 Defense Appropriations Act, defense medical research
  • HR 1625, Consolidated Appropriations Act FY19, defense medical research
  • Research opportunities at the Department of Defense and the Centers for Disease Control.
  • HR 3358/ HR 3354/ S 1771, FY 2018, Labor-HHS Appropriations Act, blood and bleeding disorders.
  • HR 3219/HR 3354,
  • Research opportunities at the Department of Defense
  • HR 6157/S 3159, FY19 Defense Appropriations Act, defense medical research

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Data Sources: Senate LDA Filings

Last updated: February 2026

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