The Hemophilia Alliance

Nonprofit membership organization for federally-funded hemophilia treatment centers

Based in PA

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AI Overview

With $940K in lobbying spend across 24 quarterly filings, The Hemophilia Alliance is an active lobbying client. Their lobbying covers 4 issue areas. Active from 2020 to 2025.

$940K
Total Spend
6
Years Active
1
Firms Hired
4
Lobbyists Deployed
4
Issues Lobbied

Spending Trend

View as table
YearLobbying Spend
2020$126K
2021$168K
2022$166K
2023$160K
2024$160K
2025$160K

Issues Lobbied

Lobbying Firms

Lobbyists

What They Lobby About

These are actual descriptions from their quarterly lobbying disclosure filings, summarizing what they lobbied Congress and federal agencies about.Issue areas: Medicare/Medicaid, Budget/Appropriations, Insurance, Pharmacy

  • Issues related to reimbursement for hemophilia services and treatments.
  • Medicare Part B Drug Reimbursement
  • Drug Pricing Issues
  • Medicare Reimbursement of SNF Services
  • S.2543, Prescription Drug Price R
  • Funding for federal hemophilia programs
  • Issues related to reimbursement for hemophilia services and treatments in Medicare
  • Issues related to reimbursement for hemophilia services and treatments in Medicaid
  • Coverage for telemedicine in Medi
  • Affordable Care Act implementation
  • Coverage of hemophilia treatments and services in private insurance plans
  • Issues related to participation in the 340B Drug Discount Program

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Data Sources: Senate LDA Filings

Last updated: February 2026

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