National Hemophilia Foundation

Seeking treatment and a cure for, and prevention of, bleeding and clotting disorders.

Based in NY

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AI Overview

With $450K in lobbying spend across 9 quarterly filings, National Hemophilia Foundation is an active lobbying client. Their lobbying covers 5 issue areas. Active from 2018 to 2020.

$450K
Total Spend
3
Years Active
1
Firms Hired
2
Lobbyists Deployed
5
Issues Lobbied

Spending Trend

View as table
YearLobbying Spend
2018$200K
2019$200K
2020$50K

Issues Lobbied

Lobbying Firms

Lobbyists

Government Agencies Targeted

These are the government entities that National Hemophilia Foundation disclosed contacting in their lobbying filings.

Centers For Disease Control & Prevention (CDC)Centers For Medicare and Medicaid Services (CMS)Health & Human Services, Dept of (HHS)Health Resources & Services Administration (HRSA)HOUSE OF REPRESENTATIVESNatl Institutes of Health (NIH)SENATE
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What They Lobby About

These are actual descriptions from their quarterly lobbying disclosure filings, summarizing what they lobbied Congress and federal agencies about.Issue areas: Medicare/Medicaid, Budget/Appropriations, Insurance, Pharmacy, MED

reimbursement for hemophilia services and treatments; Medicaid reimbursement for treatments for hemophilia patients

Labor-HHS-Appropriations Act for FY 2019

Funding for Hemophilia programs

Implementation of the Affordable Care Act

Issues related to hemophilia treatments, specialty pharmacies and the 340B drug purchasing programs.

Hemophilia research, prevention, surveillance and service programs and issues.

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Data Sources: Senate LDA Filings

Last updated: February 2026

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